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ˈstres
a state of mental tension and worry caused by problems in your life, work, etc.
something that causes strong feelings of worry or anxiety
Stress can occur in any aspect of our lives, including (and sometimes especially) caregiving. Those caring for a loved one who is ill are at increased risk of stress, and as a result, at increased risk for health issues due to that stress. The topic of stress management – especially for caregivers – has become a popular one. There are many resources available that provide tips to help caregivers manage stress. One of these is a gratitude journal.
Before we jump right into the gratitude journal, let’s talk about how gratitude can help reduce stress. Gratitude is said to help lower cortisol (stress hormone) levels in our body by about 23%. Reducing stress can in turn reduce health issues that may result from stress. These can include anxiety, depression, headaches, sleep issues, weight gain, and even heart disease.
One study indicates the beneficial role of gratitude on coping with caregiver stress and even recommends incorporating gratitude in psychological interventions for caregivers.
A gratitude journal is a tool used to keep track of the good things in life – the things you are grateful for. No matter how difficult or stressful life may get, there is always something to be grateful for. Taking the time to write it down in a journal can help you remember to take a break from everything that is causing you stress and focus on the good.
It doesn’t matter if it’s in physical or electronic form. All that matters is that you are writing it down. Physical journals can be as simple as a notebook. There are also templates online that can be downloaded and printed or journals that can be purchased. Electronic journals can be a Word document on your computer or a notes orjournaling app on your phone.
In addition to reducing stress levels, keeping a gratitude journal can:
Getting started is often the hardest part of any new habit. Here are some tips to help you get started.
Choose how you want to journal. As we previously mentioned, it can be in physical or electronic format. Things to consider when choosing how you want to journal include:
How to structure your journal. You should do what works for you. Try different templates and formats until you find one you like best. For example, do you prefer to write full paragraphs or bulleted lists?
Commit to a schedule. This is very important. Like any habit, you have to commit to it if you really want to see the benefits. If journaling every day feels like too much to commit to in the beginning, aim for once a week or a couple times a week. You can always increase it to a daily reflection once you get in the swing of things.
Still not sure where to start? Try this 21-day Gratitude Challenge!
Happy journaling!
Alzheimer’s disease and other forms of dementia are progressive diseases that eventually lead to end of life for those suffering. When your loved one reaches more challenging stages of dementia, hospice care is extremely valuable. Hospice is a specialized type of care that focuses on comfort and quality of life for patients who are terminally ill—with a prognosis of six months or less if their disease runs its normal course.
Transitioning to hospice care can be a difficult decision, but it can also be a relief for both patients and caregivers. Hospice care can provide your loved one with the support and care they need during their final months of life. You do not need to wait until the very end to initiate hospice—which is a common misconception.
If your loved one does not have a Primary Care Physician, we can help you obtain an order for hospice care. The PCP will write an order to initiate hospice. This is step one.
Once you meet with us, you will be assigned a team of caregivers who will work with you to create a care plan for your loved one. The hospice team will include nurses, social workers, aides, and other professionals who are skilled in caring for people with dementia.
We will bring in all necessary supplies and durable medical equipment (DME) that your loved one will need to be safe and comfortable in the place they call home.
Our Hospice agency can provide a variety of services to help you and your loved one transition to hospice care. These services may include:
If you are considering hospice care for your loved one with Alzheimer’s or another form of dementia, please contact us today. We make the process simple, letting you focus on what matters most!
November is National Family Caregivers Month, a time to celebrate the millions of Americans who provide unpaid care to their loved ones. Caregivers play a vital role in our society, helping people with chronic illnesses, disabilities, and age-related impairments live their best lives.
Caregivers provide a wide range of services, from helping with activities of daily living like bathing and dressing to providing emotional support and companionship. They may also manage their loved one’s medications, transportation, and finances.
Caregiving can be a challenging but rewarding experience. Caregivers often report feeling a sense of purpose and satisfaction in helping their loved ones. However, caregiving can also be stressful and demanding, both physically and emotionally.
That’s why it’s important to recognize and support caregivers during National Family Caregivers Month and throughout the year. There are many ways to do this, such as:
Here are some of the ways that caregivers help those they love:
Caregivers can help their loved ones stay healthy by managing their medications, providing transportation to medical appointments, and helping them follow their doctor’s recommendations. Caregivers can also help their loved ones cope with stress and anxiety, and maintain a positive outlook on life.
Caregivers can help their loved ones maintain their independence by assisting with activities of daily living, such as bathing, dressing, and cooking. Caregivers can also help their loved ones stay connected with their community and participate in activities that they enjoy.
Caregivers offer their loved ones companionship and emotional support, which can be essential for their well-being. Caregivers can listen to their loved one’s concerns, offer advice and encouragement, and help them to feel loved and valued.
Caregivers are essential to our society, and they deserve our appreciation and support. During National Family Caregivers Month, let’s celebrate the caregivers in our lives and show them how much we care.
If you are a caregiver and would like to know more about the services we provide, please let us know. We would be happy to serve you and your loved one!
In acute healthcare settings, such as an inpatient stay at the hospital, the quality care delivered to patients is facilitated by readily available resources such as multidisciplinary healthcare teams all operating out of one facility. A multidisciplinary team can include your doctor, spiritual counselor, social worker, and bereavement counselor to name a few. Following discharge from an acute healthcare setting, more senior patients are often sent to post-acute healthcare settings. These are settings that reside outside of the hospital and can include skilled nursing facilities (SNFs), long-term care hospitals (LTCHs), inpatient rehabilitation centers and home care agencies. At these facilities, individuals traditionally experience longer stays and therefore continue to benefit from the multidisciplinary services mentioned above. In all of these settings, the availability of such resources, especially counseling, is critical to the long-term health and wellness of residents. April is recognized as National Counseling Month, and we can’t overstate the importance of counseling for individuals in any stage of care. Fortunately, a number of counseling services are readily available to individuals requiring long term care. Three of these services in particular include social work, bereavement, and chaplain services.
Social workers work within a healthcare team as vital advocates for patients and primarily serve individuals that are identified as “high-risk”. In that high-risk category fall senior citizens. Older individuals often reach a point where they can no longer care for themselves independently and rely on family or friends to provide care. This is sometimes the turning point at which you or a loved one may turn to long term care as the best option moving forward. In long term care, social workers can play a pivotal role in identifying where an individual may require the most help, whether that be emotional, financial, family, or other support. Social workers work closely with the rest of the healthcare team and take the lead as a case manager for individuals with psychosocial or financial issues. They also operate as a collaborator for high-risk clinical issues. Not all individuals in long term care will require extended counseling from a social worker, as it will depend on how high risk an individual is. Nonetheless, knowing the services available to you or your loved one can make a difference in receiving the support you need and resting assured that you are being well taken care of by your healthcare team.
Bereavement counseling is unique in that it is a service dedicated to your family after your loved one has passed away. The primary purpose of bereavement counseling is to help families navigate their grief following a loss. This particular service is incredibly valuable as it is virtually impossible to be fully prepared for what life after loss looks like, regardless of how long a loved one has been ill or how much a family has tried to prepare themselves. Bereavement counselors can be a helpful resource when dealing with the emotions that accompany the loss of a loved one, the disruption of daily routines, the stress of managing the logistics, and the possibly changed outlook on life and mortality. When your loved one passes, care should not stop there; and with the help of bereavement counselors, it doesn’t. Having a supportive team who is familiar with navigating loss can be tremendously impactful and can often eliminate undue stress.
Spirituality can be an especially helpful source of groundedness during challenging times, transitional periods, or throughout the grieving process. Through that lens, chaplains can be vitally important to both your loved one as they move into longer term care and you, as the supporter and caregiver.
Many emotions can accompany the transition from living at home or occasional acute care stays into long term care facilities. Some individuals experience anxiety, sadness, loss of identity, fear, and anger to name a few. All of these emotions can present their own challenges and can negatively impact one’s experience if left unaddressed. Chaplains offer more than just spiritual guidance and can often help individuals navigate some of these confusing, frightening, or unfamiliar emotions. Among the many things chaplains can do for patients, some of the most beneficial services include cultivating new hobbies, facilitating new relationships, providing referrals to appropriate experts, and talking through tough emotions. Chaplains can help individuals see beyond the negative and find acceptance and hope even in challenging times.
As the family of a loved one in long term care, the burden of this transition weighs just as heavy on you. Fortunately, many of the long-term care services are available to help you navigate these challenging times as well. Chaplains can often serve as a guide for the new challenges that arise with putting a loved one into long term care. Similarly, the emotions you face may feel unfamiliar. Be sure to give attention and time to your own emotions, just as you do for your loved one, and consider utilizing chaplain services if you are seeking support during this time. Chaplains not only help to facilitate the sustainment or discovery of spirituality but also contribute to the acknowledgement and interpretation of emotions for individuals and families experiencing change, grief, or loss.
If you or a loved one are preparing to transition to a post-acute healthcare setting of any kind, be sure to discuss with your team of providers what counseling services are available to you and your family. The amount of support and care these services can provide outside of the hospital is extensive and can greatly impact the quality of a more long-term healthcare stay.
Sources:
Image 1:
https://www.counseling.org/knowledge-center/mental-health-resources/counselingawarenessmonth
Image 2: https://veteranlife.com/veteran-benefits/va-bereavement-counseling/
Image 3: https://www.yourtango.com/self/what-happens-after-spiritual-awakening
American Hospital Association: https://www.aha.org/advocacy/long-term-care-and-rehabilitation
MedPac: https://www.medpac.gov/research_area/post-acute-care/#
Net Health: https://www.nethealth.com/the-importance-of-in-home-bereavement-support-services-for-hospice-care/
Relias Media: https://www.reliasmedia.com/articles/148131-the-role-of-the-social-work-case-manager-across-the-continuum-of-care
Research Gate: https://www.researchgate.net/publication/337140540_THE_IMPACT_OF_SOCIAL_WORKERS_ON_POST-ACUTE_CARE_DISCHARGE_OUTCOMES
It can be stressful when an elderly loved one is admitted to a hospital or healthcare facility. You likely have a lot on your mind, and what to do when they are discharged may be one of the last things you are thinking about. However, it’s best to think about it early on so you are prepared to bring your loved one home.
You won’t know if you don’t ask. Don’t be afraid to ask your medical team any questions you may have. There are no silly questions when it comes to your loved one’s well-being.
While every person and situation is different, here are some questions you might want to ask (or might help you think of other questions you have):
Oftentimes, bringing someone home from a hospital or facility is more involved than simply getting in the car and driving them home. Whether they are going to their own home or to yours, there may be steps you need to take to make the home safe and accessible. A safe return home can be the difference between being readmitted to a hospital and a full recovery.
Let’s start with the first place your loved one will encounter when coming home: the entry. Make sure there are no cracks or other damage to sidewalks or steps that could cause them to trip. If there are steps (and they can use them), make sure there are sturdy railings for them to hold onto. If they cannot use steps, have a ramp installed.
Falls are a leading cause of injury for seniors, so it is important to reduce the risk for falls as much as possible.
The majority of seniors’ falls occur in the bathroom, so it’s an important room to focus on when preparing the home for your loved one. You can help make the bathroom safer by:
Remove fire hazards from the home, including:
Remember to check the batteries in and test all smoke detectors.
If your loved one lives in a home with multiple floors, make sure railings are sturdy and safe. Look into stairlifts if they are not able to use the steps. If possible, eliminate the need to use the steps at all and set up a one-level living environment.
If your loved one is able to live at home alone, medical alert systems can be great for their safety and your peace of mind. There are many options available that can be worn around their neck. If they fall, they can press a button and be connected to help right away.
Depending on your loved one’s needs, special equipment (known as durable medical equipment) may be needed when they return home. This can include:
Durable medical equipment (DME) that is prescribed by your doctor is covered by Medicare Part B. Medicare offers a great tool on their website that can help you find places near you to get the DME you need.
Have a plan for the day your loved one comes home. Who will be picking them up? What time? Do you need to get any medications or supplies on your way home? Having a plan will make the transition home go smoothly.
Talk to your loved one’s medical team about any other information you need to know. Ask them to go over things like medication and warning signs to look out for and when to call the doctor’s office.
If you can, include your loved one in conversations with the doctor about what to expect when they get home. Life at home will likely be different for them, and that can be difficult to cope with. Hearing it from the doctor and having the chance to ask questions can help make the transition easier for them.
There can be a lot to do before bringing a senior home from the hospital or a facility. Having conversations and starting preparations early can help make the transition smoother for everyone.
People often shy away from talking about end-of-life wishes. In fact, the Conversation Project found that although 92% of people feel it’s important to discuss end-of-life wishes, only 32% actually do. But it doesn’t have to be a scary topic that you avoid. In fact, it’s incredibly important to have the discussion.
As your loved one grows older, they may be hesitant to talk about their end-of-life wishes. And you may not want to bring it up because it forces you to face the fact that they won’t be here forever. Trust us, we get it. However, it is incredibly important to talk about it. Here’s why.
End-of-life conversations give us the chance to die well. What does that mean? It means our wishes are known and followed, and we have the opportunity to live our life – right up to the end – the way we choose to.
By discussing their end-of-life wishes, you will have a better understanding of how they want things to happen. This will prevent you from needing to try to guess or figure it out on your own.
That brings us to our next point. Knowing what a person wants makes it easier on those caring for them. If you discuss it with your loved one, you don’t have to worry about making the right decisions on their behalf because you already know what they want. If you don’t discuss it, you may worry if you are doing right by them. Talking about what they want and having a clear plan eliminates this pressure.
It’s also not uncommon – in situations where the patient becomes unresponsive, such as in a medical emergency – for the family to argue over what the right decision is. This just creates added and unnecessary stress and trauma for everyone. All of which can be avoided by knowing and understanding your loved one’s wishes ahead of time.
Your loved one may already know what their end-of-life wishes are. They might just be unsure of how to bring it up. Maybe they just need you to start the conversation. But how do you?
This Conversation Starter Guide is a wonderful tool to help us get the conversation started. It includes prompts to answer to help cover all the bases. Encourage your loved one to fill it out, with you or on their own. Then, you can sit down together and talk about their answers. If you have this guide printed out, you can take your own notes and save it so you are prepared.
It’s important to keep the conversation going. Our wishes can change over time so it’s important to keep one another updated.
End-of-life planning isn’t about dying – it’s about living. Understanding your loved one’s end-of-life wishes allows you to understand how they want to live their last months, weeks, and days. So, start the conversation and keep it going.
In 2020, an estimated 41.8 million adults in the United States were caregivers of someone 50 years of age or older. That’s one in six Americans. In honor of National Family Caregivers Month, we want to take the opportunity to applaud all these caregivers for all they do for those they love.
You work round the clock to care for someone you love. Maybe it’s a parent. Maybe it’s a spouse or partner. No matter who it is, you are committed to doing the best you can for them because you love them. And because you know they would do the same for you. But it’s not easy. We know that. So, we want you to take a minute to yourself right now to read this. Because this is for YOU.
You have taken on the responsibility of being the primary caregiver for a loved one who is ill. That’s no small task. You are there for them at all hours of the day and night- whenever they may need you.
Being a caregiver can be stressful on its own, but many of you are not only a caregiver. Whether you have a full or part-time job, volunteer, have children to care for, or anything in between – you have other responsibilities also. Juggling all those responsibilities can be overwhelming at times, and with all these things to take care of, you don’t often have time to stop to take care of yourself.
You don’t have to do it all on your own. Lean on friends and family for help and support. When it starts to feel like it’s too much, call a friend or loved one. Ask them for help or just to talk or listen. A strong support system is essential.
Maybe you feel like your friends and family don’t understand what you’re going through, and you want to talk to someone who has a similar situation. There are support groups available for caregivers. Through these, you can meet others who have similar situations as you. You can share stories with them or share tips with one another. At the end of the day, having someone you can lean on is so important.
With everything you need to get done in a day, we understand that it can be easy to neglect yourself and your own needs. However, it’s incredibly important that you take time for yourself. Do your best to carve out time to do something you enjoy. Do something that is for you and no one else. It’s not selfish. You NEED to do it.
It’s important to be able to take some time to do something that helps you decompress. Go for a walk. Read a book. Listen to a podcast. Whatever helps you unwind after a long day- do it! You need this opportunity to recharge so you can be at your best.
We understand it can feel overwhelming at times, but we want you to know you are doing great! You aren’t going to be at 110% every day. You may have an ‘off day,’ and that’s okay. We all have them. Just remember to show yourself some grace. You have taken on a huge role, and it’s not easy. You won’t be perfect – no one is. But each day, you rise to the challenge and do what you need to do to be there for your loved one. That’s what matters.
Don’t give up. And don’t ever doubt yourself. You are amazing!